I have been to the liverdoctor and we talked a bit more about A and his test results. Doctor wants to do a gastroscopy and biopsy however we decided not to do it with him. Our health insurance does not have direct billing with this hospital and that would mean that we would have to fork out some 4900 dhs (almost 1000 eur) to claim it back from insurance and I dont even know how long it takes to get it back. If we go to another hospital with direct billing they will bill Emirates directly and we dont have to be out with that amount of money. I was recommended a gastroenterologist at American Hospital (they have direct billing) so R went to see an GP at Emirates Clinic yesterday to get a referal. The GP got in his head, talking about how she, as a parent not as a doctor, would not put her child through a gastroscopy just from bloodtests if he doesnt have any symptoms. Instead she would introduce a glutenfree diet at home only and let him eat normally outside of the house. Instead keep checking his growth and make sure he following his curve. To be honest I was shocked with such advice.

A) Glutenfree products are really expensive so I would not buy that for someone if they didnt need it.
B) Why would I want to wait until he gets symptoms? I remember how poorly I used to feel
C) IF you switch someone on glutenfree diet any future test will not show proper results so you would have to switch back to normal diet to do the biopsy at a later stage and why waste that time?

Further to that I have read "Frequently asymptomatic children with celiac disease have autoantibodies to various organs such as antibodies that predict the development of thyroid problems or diabetes. When celiac disease is diagnosed in these children and a gluten-free diet is commenced the antibodies that predict the development of these diseases disappear from the blood. It appears that early diagnosis of celiac disease can prevent these other diseases that occur commonly in people with celiac disease. Early diagnosis can prevent the occurrence of symptoms due to celiac disease such as abdominal pain and diarrhea. The risk of malignancy in adulthood seems so far off, so many years away. However the diagnosis and treatment of a child dramatically reduces the risk of that individual getting cancer or lymphoma in adulthood!"

I think it might be easy for someone who hasnt been there to understand what it means and how important it is to get that diagnose ASAP, both for peace of mind and to start healing your intestine.

After some discussions we agreed that we will at least go for a visit to the gastroenterologist and see what he says, get a second opinion kind of. In the meantime my mum is also going to make some re-search as to what they would do in a case like ours back home in Sweden (for some reason I trust swedish doctors the most ;)